Well...I havent been very good this week about getting online...which is not the norm for me. But since my last blog I have been suffering with some wicked migraines. I also held a 7th birthday party for my son and then on Monday I went for my 4th Remicade infusion. I was planning on asking if maybe the dose needed to be increased because I dont really feel like it is working. I was suprised to find out that I already am on 5mg/kg. The usual starting dose is 3mg/kg....but my rd started me out a higher dose already because I didnt have sucess with Enbrel or Humira. So I am already at a high dose...so now what? What if it doesnt work? Do I just keep on taking it and see what happens....or move on to something like Rituxin? I am pretty nervous about the idea of Rituxin or Orencia...they are so new and I dont really want to be a guinnea pig. I think if the Remicade doesnt do anything than I am going to stay on the MTX and thats it. I dunno...I guess for now I just stay with the Remicade.
Anyways the combo of my neck problem...which is a slipped disc at C-5 and C-6...and the side effect of the Remicade has really been giving me some horrible migraines that are so hard to get rid of. Now for the new problem...I have spinal injections in my neck scheduled for this Thursday but I forgot about the co-pay...and I dont know if I am going to be able to swing the cost or not. I chalk it up to my lack of organization and the fact that I dont really want the injections. I mean..I want relief...but owie...needles in my neck...When I am feeling okay I dont want the injections at all but when my neck is really hurting bad I think I would do anything to make the pain stop.
I guess I am going to try and get them. Uggg...I suppose the injections are the lesser of 2 evils.
So that is what my week has been like..lots of headaches, lots to worry about, and unrelenting fatigue. The fatigue, I am sure, was contributed to by the headaches and the stress. Oh, yeah, and the fact that I just realized that I have not been taking folic acid. I havent taken it in months. I am not sure how I left out that little detail other than the fact that I have had a few periods of time when I was off of the MTX because of surgery or illness.
Well, next week will be a busy one, especially if I decide to procede with the injections. I will do my best to log on here and blog like a good blogger should.
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2 comments:
Goodness, Crunchy, with the week you've had you're doing great to be blogging even now.
Much sympathy on the migraines. My bad neck gives me migraine type headaches sometimes too--as Dr. Smith on Lost in Space always said, Oh the pain the pain!
Can't blame you for being a little scattered about the copay and the folic acid. Maybe put the folic acid pills in the same bottle with the mtx? Or do you take the injections.
Totally understandable to be all for those neck injections when the pain is awful, and all against them when it's better. Sounds familiar. If you do get them, I hope they bring you a lot of relief. And I hope you'll be a good guinea pig reporter and tell us all about it.
Good luck.
Oh hunny :( I'm so sorry. Like I said though, we were worried about you and had much uglier pictures in our heads on what had happened to you. So with my imagination in mind, I'm glad that's ALL it was keeping you away. I do hope you get the injections, there are some people on the boards who have had them and loved it. Get well soooooooonnnnn!!!!!
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